Luka Vugrač – one very heart-felt story

Luka Vugrač – one very heart-felt story

Croatia – I remember that 8 November 2007 as if it was yesterday – always a hyperactive boy, a good athlete, an excellent student with a pale face. That day I was as white as a sheet, I felt weak, everything around me became black, and the air barely got to my lungs. That was the first time I ended up in the hospital, and realized I may not be quite as healthy as I thought. However, doctors in Čakovec weren’t able to diagnose me correctly for three days. On the third day they realized what was wrong with me and immediately sent me to Zagreb. And then – shock.

Get this, an athlete, 13 years old, with a heart disease. I couldn’t believe it. I remember the first thing I asked the doctor after he told me that my heart is weak, and that I would need a heart transplant: “Doctor, tell me honestly, what my chances for survival are?” At first, the doctor was shocked that I would ask him that, but then he said: “Look, the transplantation itself has a 95 % success rate.”

But what he didn’t say was that first you have to survive until the transplantation. I realized this one night when I almost died because my heart rate jumped to 300 per minute, and I had to be resuscitated with a defibrillator. And so, in 2007, I spent my birthday, Christmas and New Year’s in the hospital, only to be released from hospital without transplantation.

I was still sick, my heart was so weak that I barely managed to get to the second floor, but I still had the need to function normally. It was not easy to give up sports you were addicted to or some basic activities just to be able to function normally. I got used to it, and from 2007 to 2011 I lived “under enormous scrutiny”. This lasted until 2011, when I ended up back in the hospital when my health condition rapidly deteriorated. At one point my heart stopped, the pressures equalized, and I ended up in an induced coma on ECMO for six days. The machine replaced the function of my heart and lungs. And you already know what followed next. The inevitable – heart transplantation. I must say, I was apprehensive at the thought of transplantation and was terrified by this idea because I was still afraid of ending up in that 5% of unfortunate cases during organ transplantation.

When I woke up, at first I did not believe that I was a transplant recipient, I kept asking everyone around me who gave the permission for the transplant to go ahead. But I’ve came to peace with that fact as soon as I saw that it was easier for me to breathe, and as soon as they told me that my heart was pumping normally. Oh, it was a song to my ears. After the heart transplant, I spent nearly two months at the hospital, and every day was a struggle with my mental and physical condition. I believe that I drove my parents completely crazy. It was so hard to get back on my feet after everything, after my muscles have nearly atrophied, and I also had to come to terms with the fact that I was in a hospital, and not with my class mates on the last days of school. It was difficult but I made peace with it. As soon as I got home, my condition immediately improved. When I finally walked around my neighbourhood for the first time, it was a joy, except for the strange looks of passers-by gave me because I was wearing a protective mask. Once I even almost caused a crash. So, if you ever see anyone wearing a mask, do not turn your head around and stare, they are probably wearing it for their own protection, and you can cause a crash. Basically, my condition was improving daily; I grew both mentally and physically, and was getting stronger every day. Four months after the transplantation, I returned to school. I took exams from two years all at once, went to competitions, won third place in the country, and achieved more and better results each day. After the transplantation my cerebral blood flow was improved, so I passed both the third and the fourth grade without any problems. I won awards and achieved successes in competitions and tried even harder every day. After graduation, all doors were wide open for me, I had a direct entry into various faculties thanks to all the prizes I had won during high school, and I also had the opportunity to work. Yes, I decided to work. Now a young man of nineteen, I own a company which develops mobile applications, websites and does marketing. I’m still achieving my goals and setting new ones, my life is better than ever, I went back to sports, my life is good… the best. I use my new life to its maximum – from an excellent student and top athlete, then a sick boy, I came back stronger than ever, became a hard-working man, a recreational athlete and a much better person than I was. This disease has changed me, I have become more serious, sometimes too much; I have become more sensitive, caring, but what is most important – I have become a better person.

Photo Credits_Luka Vugrac

Private photography by Luka Vugrač; Luka with class within the National youth campaign on organ donation and transplantation in Split, May 2014

Story prepared by: Luka Vugrač (translated to English by Start Ltd.)

Jurica Ester – one transplant and thousands of stars in the sky

Jurica Ester – one transplant and thousands of stars in the sky

Croatia – Each story begins the same way – you live a normal life like everyone around you, you go to school, you go out, you have friends, you fall in love…University, seaside and holidays, sports. You play water polo, like me, you swim, dive, fish, ski in the winter with friends, snowboard… You enjoy the moment and don’t think too much about tomorrow, even though you have a dream that you follow, you save money and open a store with extreme sports equipment. And you’re on a roll, you work and work, but you also enjoy life… And then you start having headaches, but you think it is a migraine. After a couple of years you have eye-sight problems, and go to see an oculist who tells you that you dioptre is 0, and that you should go to see a doctor, who takes a blood sample, and finds high urea and creatinine levels. He immediately sends you to a hospital where you are instantly put on the dialysis preparation program, because your kidneys are operating with only 10 % of their capacity, and it’s only a matter of time when you’ll end up on dialysis…Your entire world suddenly comes crashing down.

But you start building it from scratch – you do not give up. Your daughter, born only one month after you start home dialysis treatment (peritoneal dialysis), gives you the strength to go on. Ten hours every night on the machine for automated peritoneal dialysis takes away a lot – but it also gives you the independence from the hospital and haemodialysis centre, and you travel, push your old life style, you go skiing, to the beach, continue to dive and swim, and even start competing for Croatia as an athlete on dialysis. You even win medals in world championships! You become active in the association of kidney patients on peritoneal dialysis, you fight the system to get the same standard of treatment that patients in Europe get. You join with the Croatian Transplant Association, and you raise awareness on the importance of organ donation, and after seven years New Life finally comes – transplantation.

Your donor didn’t only save your life, but also brought the life back to normal for all those people around you who have suffered and fought with you for years. And he helped create a new life, because your son is born three years after the transplant, a son that perhaps wouldn’t have been born if you stayed on dialysis. Your donor lives in you and through you, and his star will shine as long as yours does – and that is why it is so important to talk about transplants, about your views and considerations regarding organ donation, because it is really important and it’s the biggest decision you can make in your life. Express your attitude towards transplantation to everyone – discuss it at home, because you never know when someone’s star will start fading away fast and suddenly and if the only way for it to shine would be to join another star – just like the transplantation saved and prolonged my life, so we can be a happy family that will fill the sky with new shiny stars! And that is why this is important, why we are all important – so let’s talk about matters of such great importance.

Photo credits_Jurica Ester

Private photography by Jurica Ester; Jurica Ester with his family

Story prepared by: Jurica Ester (translated to English by Start Ltd.)

SEEHN features in the SEE Journal of Public Health

SEEHN features in the SEE Journal of Public Health

An open-access international peer-reviewed journal involving all areas of health sciences and public health in particular, the South Eastern European Journal of Public Health (SEEJPH) recently published a review paper titled “The South Eastern Europe Health Network: A model for regional collaboration in public health”.

Written by several key participants in the SEEHN operation, the article underlines the importance of inter-country alliances to the economic development and social progress in the past several decades through the example of the South Eastern Europe Health Network (SEEHN) which has achieved tangible improvements in the regional governance for health.

Summarising the main accomplishments of the network and highlighting the keys to its success, the article follows the main milestones in network development, including its foundation under the Stability Pact’s Initiative for Social Cohesion and the three ministerial forums that have shaped its evolution, in order to show how it can constitute a model for regional collaboration in public health and thus provide several important lessons for public health leaders worldwide.

The entire article is available at the following link: http://www.seejph.com/the-south-eastern-europe-health-network-a-model-for-regional-collaboration-in-public-health/